We got the call this morning. It is now official that Corey has been diagnosed with Ewing’s Sarcoma. Tomorrow we have an appointment with Moffitt Cancer Center in Tampa, Florida. We’ll finally get to ask some questions and hope to make some more decisions about where to go for treatment.
Now I realize I started out with the diagnosis and did not really give any background to how we got there. So cue the swirly flashback scene, because here we go.
We’ve been married for three wonderful years. But throughout that time, every few months Corey would get this sharp, constant pain in his side. Usually if he cleansed his system and changed his diet some, he was fine. But then it would come back again a few month later. For the past three years this pain has come and gone six or seven times.
This last time was the worst.
The pain came, but nothing was helping. It continued for days and it got so bad that Corey was shaking from the pain.
April 11th, 1 a.m.: Time to go to the hospital.
We went to Northside Hospital with a less than stellar outcome. They took CT scans and did some other tests to let us know that Corey had a funky rib and sent him home with the advice to follow up with his primary care. No meds for the pain, no treatment plan to look into.
Thankfully, we have an amazing doctor looking out for us. Dr. Karges looked at the CT scans and the report from Northside Hospital. He told us this was much more than just a funky rib. He directed us to an oncologist.
“I’m not an alarmist, but I want to make sure we get this checked out.”
The best decision we could have made. We got a biopsy of the bone and muscle at St. Anthony’s on May 3rd. What a difference that was! The people there were so kind and so attentive. My favorite had to be the attending nurse, Ms. Helene. She really took care of my husband. Many thanks to her if she ever reads this.
The results took longer than we would have liked (but who ever wants to wait for that to begin with?). But on Friday May 12th, we went to see the Florida Cancer Specialists and we got the news. Then confirmed this morning.
So there it is. It took us three years to get to this point, but at least now we know what we are facing and what we need to do. The next step is to figure out where we need to go.
Just have to take it one day at a time.